- •Patient involved in identifying a dual-frequency DBS program to support Parkinson's symptoms.
- •DBS manufacturers encouraged to ensure all DBS systems enable patients to readily view DBS settings.
- •Clinicians encouraged to give more consideration to speech in the context of programming DBS for Parkinson's disease.
1. Case report
- Su D.
- Chen H.
- Hu W.
- Liu Y.
- Wang Z.
- Wang X.
- et al.
- Xie T.
- Padmanaban M.
- Bloom L.
- MacCracken E.
- Bertacchi B.
- Dachman A.
- et al.
2. Observations relevant to clinicians and DBS manufacturers
3. Observations relevant to people with DBS
- Merner A.R.
- Frazier T.
- Ford P.J.
- Cooper S.E.
- Machado A.
- Lapin B.
- et al.
- •At the commencement of a DBS programming session, ask the neurologist to explain the strategy they will employ that session to identify a DBS program with a greater therapeutic benefit.
- •Between clinic reviews, record the impact of different DBS programs on your symptoms. For example, record videos of moving or speaking, or the time required to complete set tasks. Such records may assist in reporting to your neurologist the impact of DBS outside the clinic environment.
- •Maintain a record of the settings for each DBS program prescribed. Just as one can discuss Parkinson's medication at a local support group, this enables discussion of DBS programs in a similar manner. Such information also provides a mechanism to check that the intended DBS settings have been programmed.
- •DBS systems typically have a mechanism to allow the recipient to switch between programs pre-set by the neurologist. When leaving DBS clinic, ensure that the best program for you upon entering that clinic is still available. If the impact of new DBS settings only becomes fully apparent after leaving the clinic, it may be helpful to revert to that previous program.
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